Friday, October 12, 2012

More ER Fun!

Hello dear friends, I'm writing you on a comfy chair beside Phil is his hospital bed. He is doing fine, watching tv and there is no need to worry. Here are the details...

Last night around 7 Phil started to have bad pain, went into the bedroom with the heating pad and came back out 20 minutes later saying, "We have to go to the ER right now." I packed essentials and we were on our way. Once again the waiting, testing, bloodwork all takes at least an hour in a half. What infuriates me is that he went from a 7 on the pain meter to a 10 at the end of that hour and a half. No one was rushing and he was crying, and in the most pain imaginable. I had it and pulled the emergency cord, and I basically told the nurse in a very firm tone that he needs morphine RIGHT now and we won't take no for an answer. 5 minutes later he got his dose. I'm learning to be proactive, because nurses really don't realize the gravity of your situation until you put up a good enough fuss. Keep this in mind for the future!

We were given a room and a little later a second dosage of morphine. Finally the pain was gone and he could watch tv in a bit of peace. Hannah came in around midnight and she really made the whole experience great. She has a way! We were moved to another room before we were admitted. The room we are in now is quite comfortable with chairs, a nice bed, storage, window with a nice view and bathroom. There is another bed across the room, but no one there- which is bonus. Phil is able to watch his tv shows and keep his mind busy. He gets tested at least every hour and has already had two doses of morphine again today.

The Dr. said that she would like us to stay another night so they can keep tabs on his progress as they start to introduce food again. Today he is on fluids and is on a constant IV drip of fortified water to keep him hydrated. He is very tough and brave, it is amazing to me. Three elders from our hall came in this afternoon for a short visit, relating encouraging notes from a special assembly day and helping us to laugh. They also said a prayer for us before they left, which was very warm and unbelievably memorable. It was in that moment that I almost started bawling with appreciation but held it in. Now is not the time.

Obviously the Endoscopy was cancelled today that was to be taken place in SF. The Dr. admitted that it is a big sacrifice to postpone it once again, but more important to leave the pancreas alone for it to heal. It is in very bad shape and cannot handle any more shock for a while. I agree with their decision. The discussion of putting a stent in at some point has been brought up, but pushed aside because giving the pancreas a break is key. We will know more tomorrow when he starts to eat food if he is ready to back home to real life. In the meantime, I must admit it means the world that I can sit back and let the nurses take care of him for a bit. They are very sweet and helpful, and I am happy that we can stay another night. There is nothing more lonely then watching your loved one suffer in private. For me, it helps for the world to know and to be there in whatever way they can to keep us smiling.

At this point the Endoscopy has been postponed till Oct 31st, which in my mind is too far off- but hopefully there will be another cancellation and we will get in sooner. We are learning patience, let me tell you. There is nothing worse then not knowing what we are dealing with. It is so much easier to deal with a disease when it has a name. That time will come, we just pray for endurance in the meantime.

Our disability papers are in progress and it is expected to kick in within a month or so. Our pay ended a few wks ago and we are okay, but 60% of his normal paycheck coming in every month will help us to worry alot less. We are not big spenders, and find dignity and joy in keeping life simple. We have a roof over our head and food in the fridge, friends and family who love us and Jehovah, of course- it's all we need.

Tonight Hannah and Tori will be coming to be with us and are bringing me dinner. They are such dear friends, it just melt my heart. We thank you all for your texts and are sorry we can't respond to you right away. We appreciate every word and the fact that you are checking in!! I will continue to update you all here. Much love and thanks!!



Sturge said...

Love you Hollie. Everything is going to be ok. dad

Jason, Becky and Girls said...

Love you both! I cant wait for life to be back to normal for you.
Hang in there, We are with you in thoughts and prayers! xoxoxo

Nana and Papa. said...

So much LOVE to you both.xxoo, and so happy that the good friends are their applying all the Loving attention.yOU ARE IN OUR THOUGHTS ALL DAY.